An example of how a person introduced to one-page profiles in a professional capacity used the approach in their personal life to help manage a long-term health condition.
Written By Dimensions
Jo is 36 year’s old. She was diagnosed with endometriosis five years ago. There is no cure for endometriosis, but Jo has had a number of surgical and medical treatments to try and manage the condition. In 2011, Jo started working for Dimensions, a person-centred organisation who supports people with learning disabilities and autism, and who use person-centred thinking in all areas of their work.
Jo has been using the person-centred thinking tools as part of her role, but has also come to realise that they can be applied to her personal life and in particular her health. As well as producing a one-page profile for work purposes, Jo decided to create one in relation to her endometriosis with the aim of assisting her to reflect on what’s important to her when managing the condition, and how others can support her well.
Jo developed her profile by talking with friends and family and thinking carefully about how the condition makes her feel, and what she wants the people around her to know.
Jo has used the one-page profile with doctors, so that they understand what is important to her, especially the need to see beyond the label of the condition. She has also used it with other people in her life who support her. Often, when in pain, it can be difficult to see things clearly and with perspective, therefore preparing for this at a time when the condition is under control has been helpful. It has given Jo the time and space to think about what really matters.
The one-page profile has empowered Jo to think about getting the balance right between what is important to her and what she needs in terms of support to stay fit and healthy. She will continue to update it and plans to use it in preparation for seeing new doctors throughout the next stage of her treatment.
You can find out about other person-centred thinking tools to help you manage long term health conditions from thinkaboutyourlife.org.